Well, today is world rare disease day. Today is all about creating awareness for people with rare diseases. And what do we want? Money? No. Commitment? No. Right now all we want is for you to like their Facebook page so we can draw attention to the cause of all rare diseases. Take it from me, it can feel pretty lonely having a rare disease, but we are not alone and here is why:-
There are over 7000 diseases in the rare disease database.
350 million people suffer from a rare disease.
That's 1 in 20 or 5% of the world population.
If sufferers lived in one country it would be the 3rd largest country in the world, bigger than the USA.
Less than 5% of rare diseases have any therapies or treatments.
75% of sufferers are children.
With so many sufferers it is time we made a stand and were noticed. By liking their Facebook page you can help make a statement to governments, insurance companies, pharmaceutical companies, medical researchers etc... That these people are not alone and cannot be ignored. You can like the Facebook page by clicking on the link below. It will take you 30 seconds.
Stay well:)
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