Update

Since I normally write about all things medical, it is nice to switch from a tourist blog and have something to report to you on my treatment.  I talked to Paula today and most of the tests that had been done were back in.  On the positive, the neurologist had signed off on CIDP so from a disease point of view I've got the green light.

However, on the not so positive side one of my test results raised a red flag.  I have not researched it yet so I am not sure if the result was positive, negative, elevated or whatever, all I know is that it requires further investigation.  So tomorrow I am going for a bone marrow biopsy to check that I don't have a myeloma.

Now I guess the big question for me is should I be worried?  At the moment I don't think so.  I have only talked to Paula and she could only answer most of my questions, the rest will have to wait for Dr Burt.  It is my understanding that many CIDP patients test positive for this test (which is called Serum Protein Electrophoresis or SPEP) so the further test is just a precaution.

One thing I am finding kind of strange is that I only heard of the news an hour ago and I am in for the test tomorrow morning.  Normally I get the go for a procedure and the test happens about a month from now. It gives me time to process all of it, do my research and prepare and this time I have all of 18 hours to prepare.

Normally I whinge about the wait, but this time I am on the polar opposite side of the fence.  I am almost being rushed.  But there is no way I am going to complain about it.  This is way more preferential than the wait.  So forgive me for rushing off, I have to go and do some work.  Stay well:)