Wednesday, December 21, 2011

Global Genes Project

This is a message that I am going to put on facebook, send to all my e-mail contacts and promote over google plus. It is a cause I would really like to draw attention to, and I hope that the content of the message will explain why. I have kept it generic so anyone can cut and paste it and send it to their address book, facebook contacts etc. I think it could potentially help a lot of people.


Do you know anyone with a rare disease? The chances are you do. You probably look at them and thank your lucky stars that it is them, not you. You probably want to help but don't think you can because the condition is so rare. You also feel that the condition is so rare that it won't happen to you. Well, here are some facts to give you something to think about:
  1. There are over 7000 diseases in the rare disease database.
  2. 350 million people suffer from a rare disease.
  3. That's 1 in 20 or 5% of the world population.
  4. If sufferers lived in one country it would be the 3rd largest country in the world, bigger than the USA.
  5. Less than 5% of rare diseases have any therapies or treatments.
  6. 75% of sufferers are children.
Individually, having one of these diseases can feel very lonely, but as a collective, sufferers may not feel so isolated. The Global Genes Project exists to raise awareness for those children and their families affected by rare disease, educate the world about genetics and it's link to rare disease, and fund innovative 'in their lifetime' research and therapy development.

Right now, The Global Genes Project is on a campaign to spread awareness about rare diseases.  They don't want your money, they just want you to like their facebook page.  More to the point, they want one million people to like their facebook page.  You can do so by clicking on the following link:


With your help we can make a difference to change the quality of life to 350 million people world wide.  So you can help.  It is up to you!

Thank you.


Please feel free to copy this message to your friends, family and acquaintances.  The more the better.  Until next time, stay well:)

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