Well what a relief. I was told I could go home! But as my haemoglobin was only 8 before I left they wanted to give me a blood transfusion. I wasn't really that mad on the idea but I have to say after I received the blood I felt so much better.
Saying that, I still do not feel 100%, far from it. I get tired at the drop of a hat especially when I'm active and although nausea has thankfully left the building I have no appetite. I could quite happily go without eating all day but I eat because I have to.
Anyway, back to the transfusion. It was definitely going to happen so I was thinking twenty minutes and we'd all be done...... Ummmmmm, no. The infusion took six hours. Blood has to be pumped in very slowly. So about 4.30pm I was finally ready to go. But there was one thing left to do.
Four CIDP patients were all at the hospital at the same time for SCT. So we all gathered in the common area for a chin wag and a catch up. Afterwards, transport services came with a wheel chair to take me down stairs so I could catch a cab back to the hotel with my wife. Freedom at last.
A last note I would like to make is to thank the anonymous people who donated blood that I received. I'll also put out a call to all and sundry that if you are well, fit and healthy, go and give blood. Someone, somewhere will thank you for it. Stay well:)
Go the white cell count Andy. Great to see you are out of the room, even if it did have a view! Costie
ReplyDelete