Hi, My name is Andy. I was born in Watford in the UK back in 1975. In 1994 I moved to Australia to attend university, it is also the same year my medical problems started with my first kidney stone a week before my nineteenth birthday.
Right now I live in Melbourne with my wife and two kids, work for the family business and do my best to support and advocate for medical research.
If you want to find me around Melbourne I can normally be found watching the cricket or staring at the sky through my telescope.
Hi Andy. I've been dealing with ET now for 26 years., It's been slow in its progression but has, in the last couple years, become very difficult to deal with. I've been contemplating DBS for quite some time but am really scared to actually go through it.It was refreshing to read your comment about it 'reall being worth it'. I am hoping perhaps you could give me some insight/advice on this. I am in the US and will be going to Stanford - it's oe of their specialties.
ReplyDeleteHi there, I have just found your blog and want to say thank you for sharing your thoughts and experiences. I have just been diagnosed with Cystinuria and am reeling a bit from the whole situation. I have just come out of hospital from a failed uteroscpy as my stone was too big and so now I have a new stent and need to go back in 4-6 weeks for a repeat procedure. Yay. I am starting to grasp just how much this is going to change my life. Kinda depressing - trying to see the positives! (?) However, as this is a fairly rare condition I am struggling to connect with others in New Zealand where I live, however I see you are in Melbourne and that seemed somewhat more reassuring!
ReplyDeleteAnyway, thanks.
Louise
Hi Louise, thanks for sending me your message. Welcome to the club:) and bad luck too:( Are you on Facebook? I can hook you up with a wealth of resources I know would be helpful.
DeleteYou can reach me here:
https://www.facebook.com/andy.price1
Cheers
A