Can you believe it has been over two years since my transplant? Neither can I. But I'm back in the Windy city for a follow up and I have to say it is fantastic to be back. Chicago is a fantastic city and I have many fond memories. So far I have caught up with many old friends and seen Dr Burt. I got the feeling he is really excited about how far his research has progressed. He didn't tell me as such but I got the feeling that he is soon going to publish or finish some of his studies and will be announcing to the world some magnificent results. But then again I may be wrong.
In terms of my follow up they were amazed at how well I was doing. They had me fill out a bunch of disability scales and all the scores were either 1 or 0. I had to fill out a pain survey too which I actually couldn't do because it made the assumption I had pain which I don't any more.
On another note I met up with another former CIDP sufferer and HSCT survivor Bryan Hinkle. It was great to meet the guy in person as I had corresponded with him over Facebook but nothing quite beats that face to face interaction. He had his wife Ann and two young children with him too and it is really nice to see the positive impact the treatment has had on not just him but his family too.
As far as enjoying Chicago goes, I have been to millennium park to watch a public viewing of This is Spinal Tap which was really fun until it started pouring with rain. And I mean it poured. They turned the rain all the way up to eleven ;) Today, I must go to American girl with my shopping list or my daughter won't let me back in the country on my return and I thought I might also take a River boat architecture tour as I could not do that two years ago as it was winter. I also have my NCV and EMG today. I'll keep you posted on how that goes.
Stay well:)
