Showing posts with label CT scan. Show all posts
Showing posts with label CT scan. Show all posts
Friday, November 4, 2011
It was too good to be true!
Just when I thought everything yesterday ran like clockwork, it did all come crashing down today when I got a call from the x-ray lab to say I need to pick my CT scan results up as they won't post them...... Oh well, I guess that is an hour of my life I won't get back on Monday, lol. Stay well:)
Busy day.
I had three medical appointments today, and I have to say I feel like I'm in the twilight zone. Why? I hear you ask. Well, I didn't have to wait more than five minutes to see any of them! The other point to note is that none of them were bad, which is becoming more common as I grow in confidence and get on the front foot with my treatments.
I started out with my tremor doc. A week ago I would have thought I had pretty much reached the end of the road in terms of what my stimulator was capable of. I was wrong. I had an adjustment and although the improvement was only minor, it was still an improvement. So, I am now thinking how much more can I get out of this. I guess that only time will tell.
While I was there we talked about stem cell transplantation and other drugs for CIDP. It was good to get his feedback and opinion even if as I suspected he was not well versed on the subject. His thoughts were that I was extremely knowledgeable about the subject and that any doctor would have to take my wishes into account.
After that I went and had a chat with my chemist. I wanted to get her thoughts on rituximab, and we ended up chatting for about half an hour. One problem that I overlooked about the drug was that it is insanely expensive. About $3500 a treatment, and is not covered by the PBS. So if I can't get on a trial, or get a pharmaceutical company or hospital to pay for it, it is probably not going to happen.
After that I had to run off to the mercy hospital to have a 'stealth' CT scan. Stealth is basically a way that they can superimpose the images of the CT scan over the top of my old MRI scans from a year and a half ago to check the lead placements from my DBS surgery. I had to question the relevance. Seeing as everything is working really well, surely the leads are in a good spot? Anyway, I had the scan, and I'm sure if something is wrong, they will call me.
Lastly, it was off to the physio for a bit of neck work, which felt great. All in all I feel it was a good day for me from a medical point of view. Until next time, stay well:)
I started out with my tremor doc. A week ago I would have thought I had pretty much reached the end of the road in terms of what my stimulator was capable of. I was wrong. I had an adjustment and although the improvement was only minor, it was still an improvement. So, I am now thinking how much more can I get out of this. I guess that only time will tell.
While I was there we talked about stem cell transplantation and other drugs for CIDP. It was good to get his feedback and opinion even if as I suspected he was not well versed on the subject. His thoughts were that I was extremely knowledgeable about the subject and that any doctor would have to take my wishes into account.
After that I went and had a chat with my chemist. I wanted to get her thoughts on rituximab, and we ended up chatting for about half an hour. One problem that I overlooked about the drug was that it is insanely expensive. About $3500 a treatment, and is not covered by the PBS. So if I can't get on a trial, or get a pharmaceutical company or hospital to pay for it, it is probably not going to happen.
After that I had to run off to the mercy hospital to have a 'stealth' CT scan. Stealth is basically a way that they can superimpose the images of the CT scan over the top of my old MRI scans from a year and a half ago to check the lead placements from my DBS surgery. I had to question the relevance. Seeing as everything is working really well, surely the leads are in a good spot? Anyway, I had the scan, and I'm sure if something is wrong, they will call me.
Lastly, it was off to the physio for a bit of neck work, which felt great. All in all I feel it was a good day for me from a medical point of view. Until next time, stay well:)
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